Transcript
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Welcome to the Dear Menopause podcast.
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I'm Sonia Lovell, your host Now.
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I've been bringing you conversations with amazing menopause experts for over two years now.
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If you have missed any of those conversations, now's the time to go back and listen, and you can always share them with anyone you think needs to hear them.
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This way, more people can find these amazing conversations, needs to hear them.
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This way, more people can find these amazing conversations.
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Welcome to Dear Menopause everybody.
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This week, I am joined by a fellow perimenopause and menopause advocate and I am introducing you to this lovely lady because I think it's really inspiring to hear other people's stories and I think it's really important and Tara and I actually just touched on this before we started recording for when we share stories, other people get the opportunity to see themselves in that story and often that leads to people feeling like they're not alone.
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Oh, my goodness.
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Other people have been experiencing this.
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I just thought it was me and also can give them ideas on how they can help themselves, go and get support and that sort of thing.
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So this is why today, I am bringing you a conversation with Tara Eglinton.
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Tara, welcome to Dear Menopause.
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Hello Sonia, I'm thrilled to be on the podcast.
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I'm a big fan and, yeah, I've loved hearing previous guests that you've had and all the little nuggets of wisdom that I've gained along the way.
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Well, that's nice.
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I'm glad you've gleaned some nuggets of wisdom along the way.
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That's, I guess, the greatest thing I think that can happen from my podcast episodes.
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Tara, you and I met for a little bit of background on Instagram the joys of social media.
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You reached out to me as someone that followed my Instagram account, was a listener to Dear Menopause, shared a little bit of your story with me, and then we met in person at the Senate inquiry hearings in Sydney when we both shared our lived experience on the same panel.
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So why don't you fill everybody in on actually who you are and what led you to this advocacy kind of path when it comes to menopause and perimenopause?
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Absolutely, sonia.
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So I'm, to start off with the basics a 40-year-old woman.
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I started experiencing perimenopause symptoms at the age of 37, so quite young actually and it was a bit of an extended journey for me because of my age to get the diagnosis and to also receive help in terms of managing my symptoms.
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I'm a writer, I write for young adults, so I'm used to kind of dealing with the other side of things, which is just the emergence of hormones and the teen years.
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So it's quite funny to be sort of on the other side, which is this wild ride of hormones going up and down.
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So, yeah, for me, I knew next to nothing about menopause.
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I have to be honest, when I started my journey I was very naive.
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I thought menopause was pretty much your period stopped one day out of the blue, you might get a bit hot and that was about it.
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And I had no idea that there was this whole concept of perimenopause, which is the stage obviously you know the transition towards the one year without the period which is menopause.
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So for me, yeah, I'm hugely passionate.
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I had a really big impact in the last couple of years on my mental health in relation to perimenopause symptoms.
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I think when we think menopause and perimenopause, you know, when we're perhaps younger or we haven't learned too much about it, we think you know ovaries, reproductive system, that kind of area, but actually perimenopause and menopause hugely related to the brain and brain symptoms, which is something that we're only kind of just finding out now, as they're starting to do more research in this area.
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So for me, yeah, that was why I made the submissions earlier last year and was really passionate about that, because I felt very alone at the time of my journey and then being able to go online and actually read the submissions, because they're all available there and they were from this huge spectrum of the Australian population, which was really fascinating yeah, like everyone, from TV presenters to female CEOs, to just women in all different ages and stages, and so forth.
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What really fascinated me was, kind of overall, this huge percentage of women who had been experiencing impacts on their mental health and sleep for many years, which had affected their lives.
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Yeah, every aspect of their lives, isn't it Every aspect?
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So, tara, let's get a little bit more specific about that.
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I'm really keen to know.
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37 is very young to start experiencing perimenopause, so what were the initial kind of changes or symptoms that you noticed that created a drive in your way to find out what was going on and why your body wasn't behaving the way that it had previously?
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And secondly, I'd be really interested to unpack your mental health struggles that you did have.
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Absolutely so.
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37, yeah, it was the last thing that I expected at that age.
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I was kind of thinking I'd had a very happy.
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I sort of felt like I'd come into a lot of my confidence and happiness in my early 30s.
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So kind of getting into this later stage, 30, yeah, it was not something I had thought would happen.
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What's really interesting, I think a lot of the time with perimenopause for people, is it often starts out quite subtle and it can present in quite a number of ways that perhaps we can put down to other causes.
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You know, at the start I just had I'd always had terrible period pain.
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I had sort of worsened period pain, heavier periods, probably a bit of increased PMS and weirdly burning feet when going to sleep.
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That was probably one of my very first symptoms and that was probably about 36.
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So that was early on.
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And then 37, sort of the latest part of the year of being 37, I suddenly noticed I was having a lot of trouble with sleep.
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I was having a lot of trouble getting to sleep.
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I was having a lot of trouble staying asleep or waking up at three in the morning, you know for an hour or so, which now, looking back, that's some of the really sort of typical symptoms.
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I also had the beginnings of heart palpitations, which was really interesting.
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So I was getting all types of arrhythmias strong, like heartbeats, fast heartbeats, skipping heartbeats, and I was also I had the very beginnings.
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I sort of had this onset of just anxiety and panic and this presented itself.
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I guess at the beginning it was kind of gradual over the first two months where I was getting the heart palpitations and the sleep problems, and then suddenly I had a very bad panic attack, just, I'd say, in my PMS stage, just before my period, and I'd never had a panic attack before and it happened out of the blue.
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It was, I think, people who experience panic attacks.
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You know, you don't, you kind of know what they're about, but if you haven't had one before you, you know, you think something's terribly wrong.
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You often feel like you're physically or mentally thinking something terrible's gonna happen, you're gonna die.
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I also had in that moment.
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It was, it was very brief, it was probably about 20-30 seconds, and at that moment I also had, in that moment it was very brief, it was probably about 20, 30 seconds, and at that moment I also had an intrusive thought.
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And so for people who don't really know what intrusive thoughts are.
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They are thoughts that they would go against your values, so we would call them, I guess, ego dystonic.
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They might be something terrifying.
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They can be quite common for, say, some women struggling with postpartum um as well, so can you give us an example, without using your lived experience, obviously, but perhaps an example of what would be considered an intrusive core um thought that goes against someone's values absolutely so.
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uh, you might be in the kitchen, you might be chopping vegetables and suddenly this feeling of fear and a funny thought pops in your head about, accidentally, say, chopping off your finger with a knife.
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That type of thing, intrusive thoughts, are actually more common than we think.
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They happen to people with anxiety and OCD, but they also happen to the wider community Most of the time.
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Because we're not in a heightened state of anxiety, most people go, oh, that was a weird thought and they go about their day and they go, oh gosh, funny one.
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But I think when somebody's suffering from anxiety or heightened sort of state of fear, those thoughts can get a bit more sticky.
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So those types of thoughts are often part of a condition called OCD, which is called obsessive compulsive disorder.
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I think some people sort of think of OCD as like the cleaning disorder.
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So they think of people, you know, scrubbing at things, making things clean from germs or organizing things, or very tidy people.
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Yeah, it makes me think of the, you know, kicking the light switches certain amounts of times, or you know turning the door handle a number of times as part of a routine.
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Yeah, okay.
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Yeah.
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So OCD is actually more what people don't realise is it's actually more the presence of, say, intrusive thoughts or obsessions you would call them.
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So you might have an intrusive thought, you might get stuck on that thought.
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You might go why am I having that thought?
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What does that thought mean about me?
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Am I going to have more of those thoughts?
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And that can kind of kick off a bit of the compulsiveness.
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So you might do things to alleviate the distress.
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You might Okay research on the internet to to go.
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Okay, you know, would I really do this thing, would I not?
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You might ponder in your mind over and over again, you might distract yourself, all sorts of things.
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So it's quite an interesting thing.
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And I I had never kind of um struggled with OCD prior to Perry, maybe a tiny bit, I would say, probably around 11, probably just before puberty, interestingly enough.
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So that time where you've had those fluctuating hormones for different reasons, but yeah, so this is something that has presented, but at 11 or 12, you're not really going to even remember, probably until you had that re-triggering that you'd even experienced, that remember, probably until you had that re-triggering, that you'd even experienced that Exactly.
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And they know from studies that there's a big connection with postpartum and OCD and intrusive thought.
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So it often happens to new mothers who are obviously, you know, their hormones are fluctuating, they're changing and they're also in a state of, I guess, not a lot of sleep, you know, worrying about their baby and so forth.
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So there's been quite a lot of research done about that time in our lives, but there's actually been very little research done about OCD in perimenopause.
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We're seeing a little bit coming out of the UK with Dr Louise Newsome.
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She's had some patients on her podcast and so forth and I actually it's very interesting, I think, since I've started talking about it more and participating in perimenopause apps and forums and things like that you actually see quite a bit of this happening in this stage in this initial kind of, as the hormones are changing, and so how did you get your?
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diagnosis.
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Yeah.
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So at the time I went this is really odd, you know I had been a very confident person.
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I loved travel, I loved going out, I was just generally pretty happy in my.
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So the stuff that was happening with you know, the sleep and the anxiety and the panic, it just felt very unlike me.
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And I went to my GP at the time and I just said, look, I explained what it felt very confronting.
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I'd never kind of been in to speak to my GP about mental health.
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I'd never having to disclose, you know, an intrusive thought.
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I was like, oh, my goodness, what's she going to think?
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Lovely lady, like I had never seen her before, and she was incredibly compassionate and understanding.
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She said to me oh look, this was during the COVID lockdown.
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She said, oh, look, you know, we've had a lot of increased anxiety during the lockdown.
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I think you know you've been under a tremendous amount of pressure at work, which I had.
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I was working for, you know, the healthcare system during COVID.
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So it was relentless.
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Yeah, okay, yeah.
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And she just said, oh look, you know, can you take some time off?
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You know, maybe it's a good idea.
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You, you know, know we can refer you to a psychologist so you can have a chat about some of these things.
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And then I started seeing a psychologist, um, and they said, oh, look, from what we can see, look, this just seems to be, you know, a GAD, generalized anxiety disorder with a bit of OCD, um, and they just said, oh, look, we can work on this with uh CB, so obviously a form of talk therapy.
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And so I went into this and I was like I'd never been into psychology sessions and obviously they're great, they're really really helpful.
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But the thing I found was I was sort of applying these things, that I was learning really really diligently and getting progress.
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But then I was finding, just at certain times of the month, this was just going out the window.
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It was this very physical based anxiety that was extremely in the body.
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So I would just be waking up and my heart would be racing, I would feel shaky, I don't know how to explain it.
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It was just this heightened sense of anxiety and fear.
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And then I'd have days where this would completely disappear and then I'd go through another patch and I was kind of noticing that it was lining up with certain it's in my cycle.
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So I went back to the GP and I said look, I don't know much about hormones, but something feels like it's off.
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Here there's a passion.
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She was very lovely.
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She ran all my hormone blood tests.
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She said everything's normal.
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Um, it's just anxiety you know that you're presenting with.
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So I kept proceeding on it and I noticed as time was going on, the following year I was um struggling really badly with sleep around my period.
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I was waking up and I didn't realize it at the time because no one had told me what a hot flash was you know, so I had covers up, covers down.
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covers up, covers down.
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I thought my body would feel boiling hot, like I'd be boiling hot to touch.
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I was getting more headaches.
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I was getting I'm trying to remember what else I was getting burning ears, so it sounds like your symptoms started to intensify, yeah, yeah, and did they become more regular, as well as, opposed to being where you were noticing them more around your cycle, did they become more regular.
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Yeah, in 2022, so this was probably about a year later.
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That's when I really noticed like I was just getting a lot more.
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Yeah, a lot of this stuff was presenting throughout the month, you know, not just around the period.
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So you know, and I started to get my first night sweat.
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So I was waking up and, you know, your pillow's drenched, oh my gosh.
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Night sweats are the worst, I think.
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I mean I know that there's some awful symptoms, and you know your pillow's drenched.
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Oh, my gosh Night sweats are the worst.
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I think I mean I know that there's some awful symptoms and you know your OCD and your anxiety and everything sounds very hard to unpack and manage.
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But for me personally, the night sweats just.
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And for me there was also this I suppose shame in some respects around having to wake my husband up to tell him that we needed to change the sheets because I had literally drenched them.
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Yes, it's weird, isn't it?
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My cousin and I are the same age, my paternal cousin and we've had nearly identical symptoms, interestingly enough.
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Yeah.
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And she says it's like waking up like you've been swimming, like you've been in a pool, you know, and you're sweating out of places you never realized you could sweat out of.
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You know, and you're sweating out of places you never realised you could sweat out of, like elbows, and oh my gosh, I don't know what it is about the elbow sweat, but it is.
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It is, yeah, it is a really hard one to manage and to cope with and yeah so sorry I took you on a segue there, but yeah, it's one that really does kind of confront you and kind of go hang on.
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Something's really not right here.
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Something's really not right, you know, and I think for me it was quite frightening because I was going into the GPs and nothing against the GPs, like I had two female GPs and one of them who had been with me through all my late 30s and very switched on and helped me with lots of issues.
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But I think, going in and saying, look, I'm having to put my pillow out on the line to dry, you know like, because it's that wet and I'm having to get completely changed, and and then they're going well, your hormones are okay, you start, really, you know, I think that adds to the anxiety.
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You're going well, do I have?
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something or something you know what is it?
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is it something?
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Know that I can't see that's happening inside my body?
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So yeah, and I think for me as well, the lack of sleep, you know, just not being able to sleep, and I think this is where I hear so many women in that sort of early to mid-stage peri, where that's one of the initial symptoms and it's such a compounding symptom as well, like it, you know.
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You then get the flow-on effect to, you know, fatigue the next day and cognitive fatigue and you don't want to exercise because you're exhausted and you're snappy and cranky and irritable, and it really does impact so many areas of your life and often if you kind of happen to find a practitioner that can really sit with you and unpack, exactly you know, and you can get back to that root cause of literally just finding a way to resolve the sleep.
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So many of the other things do resolve themselves once you've got that sleep sorted.
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Yeah, I think if somebody had helped me with the sleep early on and I'd got that tackled, like you're saying, I actually think that the anxiety and the ocd wouldn't have um progressed to the point that it did you know yeah yeah, yeah, and they know that women with um sort of worst hot flushes and worst night sweats um actually have more impact on their mental health, which is that vicious?
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Cycle of just not getting that sleep and disruption to the brain.
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So at what?
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point.
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Was somebody able to kind of join the dots for you and not rely, I'm assuming, on those perimenopausal blood tests that we now know absolutely are not an indicator of where you are at in the perimenopause journey?
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Yeah, it was a long journey.
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I think, like I was saying, because of my age and because of you know, kind of getting that pushback.
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I just I was doing my at this point, I was doing my own research and going okay, like you know night sweats, increased anxiety, heart palpitations, could this be this thing that I've just heard of called perimenopause, and I was sort of desperate at this point because my quality of life had just absolutely gone with, even with all the therapy.
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The intrusive thoughts were just this constant barrage.
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You know, I would try, and I was somebody who loved going out and it got to the point where I was struggling to go to the supermarket, like I would just feel such panic which is constant, constant sort of intrusive images popping up in my mind that were just getting worse and worse, despite therapy.
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Wow, you know, and I was also going through, I guess, starting to get a bit of the mood stuff with that, we know, shows up, you know, where you feel totally fine one day and the next morning you wake up and you just feel really low, you know, and you don't know why, and it's frightening, you just go.
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How can I, how can I have felt amazing only last night and I've woken up and I I feel like I just my chest is hurting.
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I want to cry.
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I feel despondent.
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I was somehow keeping up some form of sort of managing at work.
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I don't even know how.
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I had a very understanding boss and had some flexibility which made a huge difference.
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But I just knew I couldn't go on any longer like that.
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Like I was waking up in the morning and going how am I going to get through the day?
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I'm'm actually I can't.
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This is getting to the point where I can't leave the house like what's going to happen to me.
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Is this the rest of my life like this?
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So I'd done my own research and I'd previously seen for other female issues in at the women's health, women's health and Research Institute of Australia, wiria, which is located in Sydney, who has a whole team of sort of women's health experts everybody from endometriosis to women's nerve pain, to hormones and so forth.
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So I managed to get into a specialist there who for the first time this was two and a half years in actually didn't dismiss me and said that sounds like typical perimenopause symptoms and that word typical must have, just really Because you honestly you think you're losing the plot.
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And I mean that's what they said to me at the clinic.
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They said like just about every single woman who walks in here is in tears, saying that they think they're going crazy.
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So it made me feel just less alone in what I was going through at that stage.
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I remember sort of feeling like I was going to cry from relief after that.
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Oh, I can imagine.
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Yeah, and she, yeah, she listened to everything.
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I'd gone in very kind of prepared, expecting to get pushed back, you know, with my list of checklist of symptoms, which I'd encourage any woman to do.
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You know you can go online and you can download the AMS symptom score card, which is a really great tool to obviously take in to your GP or your specialist.
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And that was the.
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And then she offered me menopausal hormone therapy, um, which I never thought so, straight away at that first appointment, wow.
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So I'm intrigued to know, though, what was your initial reaction to that, because we hear so many people that are still so fearful of HRT.
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Mht same thing, hormone therapy, yes.
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What was your initial reaction to being told that she wanted to prescribe you menopausal hormone therapy?
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At that point because I'd been doing my own research.
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So I had stumbled upon Dr Louise Newsome a few months prior and I'd been kind of listening to information about it.
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Because I think you know I still encounter I talk about perimenopause and menopause to everybody.
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Now I'm a bit of a broken record just because I want to normal, normalize it, um, and I still get constantly oh no, but that causes cancer.
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I don't want to get breast cancer, I don't want to get other forms of cancer yeah, my mum took that and she got breast cancer yeah, yeah, yeah, yeah.
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So and a lot of people don't realize, obviously, that that study, you know, was done on a completely different form of hormone therapy and yeah, and different age group and yeah, so many flaws yeah okay cool, so you were open to to that as a therapy, but mostly because you actually already done your own research and read about that as being a potential yes form of therapy that could work for you anyway yeah, so that was great.
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So I was able to get started on that.
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At the same time, because I had been struggling so badly with the anxiety and the OCD, I started seeing a.
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I'd found an excellent psychiatrist.
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So this was a psychiatrist who specialized in obviously being able to prescribe, but also in lifestyle management and on a lot of things like that.
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So I wanted to get a proper diagnosis.
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Obviously, psychologists are excellent to speak to, but with the OCD component, I wanted to be sure that that's what I was dealing with and I started seeing her around the same time as I started taking the MHT, so we were kind of just talking through things.
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She agreed she made the diagnosis of, yes, gad and ocd.
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She said this is interesting.
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I would say that there probably is a hormonal component to this, given the um you know timing of the onset exactly, um, that I'd never struggled before and it was quite interesting.
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She's been amazing.
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And I think what I've really liked is being able to kind of work with her, to go okay, you know she's always very much listened to me.
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I've been able to say look, you know the MHT.
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I feel like you know this.
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I'm feeling good at this part of my cycle.
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I'm feeling terrible at this other part.
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I'm struggling still with this.
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She at that stage was sort of going oh look, um, you have OCD.
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I don't know about MHT potentially helping that, but we can see.
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And I guess for me the MHT journey and I would say to a lot of women is, when you start out, it's a very individualized thing, everybody's.
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It's a bit of a journey in terms of finding the right dosage and combination for you.
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I think a lot of people start it and sort of expect immediate results A silver bullet.
00:24:51.761 --> 00:24:52.041
yeah.
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Yeah, and I think some women have that.
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You know they go on and they've been on for three days and it's like you know they go.
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Oh my gosh, everything's gone.
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And for me it was a longer journey.
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I had to sort of.
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You know, I was on the transdermal estrogen, so I was on the patches and I was kind of just seeing how I was going with raising that.
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For me, the interestingly enough, the absolute kind of magic for me was going continuous with progesterone.
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Okay, so rather than cyclical.
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Yeah, for some reason, with my OCD and the anxiety and the intrusive thoughts when I got on the continuous dosage yeah very interesting I yeah.
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I would say I went from having acute OCD, so really really bad, probably right down to mild some days subclinical which.
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I can't believe myself, to be honest, after that many years.
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That was a shock to me.
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Since then I've sort of my original specialist has gone on maternity leave there at Wiria and I've been seeing Professor John Eden, who's obviously very well known reproductive endocrinologist and menopause specialist.