Transcript
WEBVTT
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Welcome to the Dear Menopause podcast.
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I'm Sona Lovell, your host Now.
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I've been bringing you conversations with amazing menopause experts for over two years now.
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If you have missed any of those conversations, now's the time to go back and listen, and you can always share them with anyone you think needs to hear them.
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This way, more people can find these amazing conversations, needs to hear them.
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This way, more people can find these amazing conversations.
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Hi Jules, hi Sona, thank you so much for joining me today on Dear Menopause.
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I'm excited for a chat with you Now.
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Anybody that listened to my episode with Ceri Cashell, you'll know Ceri talked talked about a patient that came in and introduced her to learning about testosterone and the sex hormones from a midlife woman's perspective, and it literally changed how she treats her patients today and how she operates in the world of medicine.
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And today I'm going to introduce you to Jules.
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Who is that patient?
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So we call her patient zero, kerry's patient zero.
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So we call her Patient Zero because Ceri's Patient Zero.
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But Jules is an incredible advocate for self-care self-advocacy when you're talking to your GPs and she has a really fascinating backstory that I want you all to hear.
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So, jules, enough about me telling everyone who you are.
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Why don't you then tell us a little bit about who you are, and then we'll dive into your story as Patient Zero.
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Well, yeah, patient Zero's quite a cool name.
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Yeah, so I, um, obviously grew up in England.
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I moved to Australia when I was pregnant with my first boy, actually, so 16 years ago.
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He just turned 16.
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I am a registered nurse and I worked for many years over in the UK in cardiothoracic intensive care, looking after people after they'd had heart surgeries and heart attacks and things, and worked my way up through the ranks there, worked all over the place, ended up in London.
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The houses of parliament and Big Ben used to tell me whether I was late for work or not.
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So that was quite cool, met lots of fabulous people along the way and, you know, did all things, and then moved to Australia, where life changed for me a lot there, I think, looking through the lens of hindsight, I moved to Australia when I was pregnant with Connor, my big one.
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I was 32 weeks pregnant or something when I stepped off that plane.
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My husband is Australian, so we lived with his family and he's Australian, um, so we lived with his family, um, and we were really going to sort of live with his family for a few weeks until he managed to get a job and, um, and we move into our own place.
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He worked in financial services and so he was.
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He was, you know, guaranteed a job.
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When he got to Australia and then the GFC happened, so that was actually so he couldn't get a job.
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We were living with my in-laws, who were amazing, but I didn't want to live with my in-laws.
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My husband didn't want to live with our in-laws and we got a new baby.
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So I had to go back to work.
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So I wanted to register.
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I wanted to get registered as a nurse here.
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So for me to register as a nurse in Australia, the requirements were that they wanted me to do an English language test, which is ridiculous because I'm English, I did a degree in English.
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So anyway, I went to go and submit my application, which you have to do in person.
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I just had a baby.
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He was in my front and I get to the queue and they're like I said I want to submit my application to do the English language queue and they're like I said, I want to submit my application to do the.
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English language test.
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And they're like, sorry, you needed to make an appointment to submit your application to do the online test.
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And I'm like, well, I'm here now, like can't you just submit it?
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They're like, no, you've got to do it, you've got to make an appointment to submit it.
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And I think it was just that postpartum desperation to earn money for my family to get me out of this situation.
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So I just went right, I don't know, and I marched all the way down to wherever it was it was the nursing and midwifery board, I think of New South Wales at the time with my little boy in his pouch.
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It was hot, I was sweating, I had to stop to breastfeed anyway.
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And I get into the nurse and midwifery board thing and I said this is ridiculous.
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I said all I want to do is work as a nurse.
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Right, I've got agencies want to book me to work a night shift tonight.
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I've got 10, 11 years experience working in intensive care.
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I was a sister on a really busy intensive care unit in the UK.
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Why do I have to do an English language test and I have to go through all this thing?
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Just what is it anyway?
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They took me into the back room because I was creating so much fuss and, um, they said look what you can do.
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And they gave me a kind of a little kind of way around this procedure, to this, this protocol, and said look, if you do, xyz, you don't have to do it.
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Well, I got my nurse registration and worked as a nurse here.
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Um, meanwhile I developed quite nasty post natal depression with him.
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I didn't sort of realize that it was post natal depression.
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I just thought that everybody was a bit sad after they had a baby.
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Um, it got pretty dark at times, um, and I reckon the post natal depression really hit in probably at about nine months nine, ten months, yeah.
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But I was just like I didn't know, I didn't really have a huge amount of friends over here that I could really talk to.
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I just thought everybody was tired, everybody had very dark feelings and I thought this was just a normal part of being a mum and I was working and I was doing night shifts and stuff like that.
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But retrospectively I was actually really quite unwell.
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Yeah.
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I didn't seek any treatment or any help for that.
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I had a really good chat with a really good friend of mine and I sort of realized, okay, that's okay and that was kind of enough.
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Anyway, I carried on working as a nurse.
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My husband couldn't get a job, so I was just the primary income earner with my little baby in a country that was quite new to me.
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So it's a lot.
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There was a lot, and then and then I had my second baby.
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He was born about two and a half years or so after my first um.
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He was.
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He was a plant like we.
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We actively wanted a baby.
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I still wasn't well.
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Like retrospectively I was not well and then when I fell pregnant with him I was quite a difficult pregnancy.
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I was quite sick.
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I had varicose veins and I had clots in my legs and stuff and had to sort of inject myself with heparin and like I was quite unwell.
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But I got through that and my world really did sort of collapse a little bit after he was born.
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He was quite a challenging baby.
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He was a screamer.
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He was that baby that you hear in the supermarket where you're like that's not mine.
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He was a supermarket where you're like that's not mine.
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He was mine anyway.
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So so that was really challenging.
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And he got quite sick and ended up in hospital when he was about eight months old with really nasty pneumonia and gastro, and so that was really tough.
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And then I looked after him through that.
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I was actually sick at the same time with it, with it as well, and anyway, when he it was about two weeks after he came home and I just fell like really hard in a big heap.
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I was so anxious, I was so, so thin like I look back at pictures now and I was very, very thin.
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And finally I think I spoke to somebody that made me realize that this wasn't normal to feel like this and it wasn't normal to have these dreams and these, these thoughts.
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And so I I got some help, I saw a psychologist and I got on some antidepressants and the world was suddenly a much nicer place and a much better place and I was happy.
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After that I felt like really good and I really enjoyed my kids.
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And that's when I really sort of got into living in Australia and life in Australia started running, got some great group of friends and yeah, and my job was okay and you know.
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So things were sort of looking up.
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We bought a house Like it was good and then carried on working as a nurse, and then my number three appeared, so we weren't planning on a third.
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Not as well planned as number two.
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Anyway.
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So there we go.
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So now I have three beautiful boys and he, you know that was our family complete.
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We're so grateful.
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They're so healthy, beautiful boys.
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And I actually saw Kerry at the time and I said, look, I've had the history of postnatal depression.
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I was looked after so beautifully with my third baby.
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I saw a psychiatrist, like there was so much help in place for me because I had had postnatal depression.
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And can I ask you a quick question there?
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Do you think that's because of your history, so therefore you were looked after a little bit better, or do you think that the, the awareness of postnatal depression had shifted and therefore there was more care?
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anyway, I think because you have a history of some kind of depression, the, the criteria and the kind of um alert scoring warning score is if someone's had a history of depression or postnatal depression, they're going to get like they go down a different pathway right when they're pregnant again and I was.
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I had all my babies in the in the public system.
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So I think, because I'd had a history of postnatal depression, instantly I was referred to a social worker who worked through me through the whole pregnancy and so that was fabulous.
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So I saw a psychiatrist and the social worker was there the whole time, which is beautiful.
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She actually worked with me on the ward that I worked on at the hospital.
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So it was great.
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So it was really nice like the northern beaches of Sydney.
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It's like living in a tent.
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Everyone knows each other, we're all connected in some way.
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So that was beautiful and she was amazing.
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Actually she made such a difference to me and that pregnancy.
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And then my third boy was born and um and I I spoke to Kerry at the time and and I said look, I think she's like.
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She said what do you think about antidepressants?
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Because I'd stopped them during the pregnancy.
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Um, and she said look, I think probably just giving you history.
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You want to make life as easy as you possibly can.
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Go back on them and I went back on them and it was the best decision because I had the most beautiful postpartum experience Like.
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It was so awesome and fun and he was a fabulous baby.
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He was a cafe baby, you know.
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One week you'd sit on your lap and take him anywhere and he'd entertain the crowd and he was fabulous.
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Was that because I was a more chilled mum and I didn't have any, you know, anxiety?
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He didn't feed off my energy.
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Yeah, yeah.
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So who knows, who knows?
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So that was fabulous.
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So my menstrual cycle is very regular but I have always struggled with PMT and again, I just thought that was normal.
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I have quite nasty mood swings and I'm generally quite a positive, happy person.
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You know, like socializing, but there would be times in my menstrual cycle that I would want to just go and lock myself in.
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My room felt quite dark and I describe it as like the roller coaster.
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So you're on the up and you're all happy, and then after you ovulate, you're on the down and it's all kind of terrible.
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I thought that was normal.
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Like you know, we don't really talk about our periods that much.
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You know, we don't talk.
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We well, my generation probably.
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You just accept it, right, you get PMT, you just get on with it, whatever.
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So I was like oh, okay, and then we get to about I'd say it was like the end of 2019, um, just before COVID.
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So, as I mentioned before, I used to do like running.
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You do half, half marathons and things um, have a bit of a nickname.
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I used to have a nickname jogging jewels.
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So there's a few jewels that live around me and I'd be the jogging jewels because I was always running.
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I run a lot and then I got to sort of I was working.
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I was like I need to.
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I'm getting, I'm getting in my 40s, I need to start doing some strength training.
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I'd looked after a lot of women who had nasty fractures and things like that.
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I need to do some resistance training.
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I know this is good for my bones, so and I'd got a bit bored of running.
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So I was like, okay, I'm going to switch to some kind of weight training and some kind of hip kind of style and training.
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So I joined a gym and I actually got quite good at it.
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Anyway, I get to the end of 2019 the workouts that I would be really good at.
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I suddenly was struggling.
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I was like this is not right.
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I'm short of breath, I feel really tired, I'm not enjoying it, and I just felt quite flat, like someone had turned the color down on my life and just yeah, I just felt a bit kind of like this isn't great.
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So I went to Kerry and I said, look, I feel really tired and like, just, still on your antidepressants at this time antidepressants been on those forever, probably will antidepressant.
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It's been on those forever, probably will stay on those.
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But I was like this isn't.
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It wasn't anxiety, it wasn't like I'd experienced before, like I wasn't depressed or anything.
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I didn't feel depressed, just felt really flat and tired and short of breath and of course, because I'm a nurse, I instantly think I've got some kind of terrible disease.
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Anyway, I've got some kind of terrible disease, right anyway.
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So she goes look, I will do a full set of bloods and we'll see where you're at, like, we'll just check your iron, we'll check your thyroid, we'll check your um vitamin d, we'll check your liver function, we'll check your urine, your kidneys, which is a normal routine blood test.
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And it came back with low iron.
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And she goes oh, do you have, you know, heavy periods?
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Do you bleed, you know?
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Do you know, do you have any blood in your poo or anything like that?
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I'm like what's a heavy period?
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Like I don't really know, because again, we don't talk about how much blood we lose.
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I was like maybe I don't know really.
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So, anyway, iron came back low, treated with some iron, and I felt better for a while.
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I also got investigated for a whole heap of other stuff at that time because I didn't know that my periods were heavy.
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I didn't realize that it was not normal to pass clots and all you know, quite big volumes of blood and need to be near a bathroom for at least a day a month.
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You know, I didn't know that wasn't normal right.
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Well, so you were bleeding that heavily in your normal cycle, but had no idea that that was not normal.
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So therefore you were losing a lot of blood through your so it's probably yeah, so it's probably a combination of probably slightly heavier periods the normal, or heavier periods than normal, and my body not maybe not eating to meet the demands of my body.
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Yeah, not fueling.
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And yeah.
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So I was like, okay, start, start iron tablets.
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And I also got invested because I didn't know at that time she's like, look, I'm going to investigate you for and make sure you're you're not bleeding from your gut, you know, make sure you haven't gone out also or rule out any other causes.
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So over that, over that time, I ended up having blood in my stool so I ended up having to have a colonoscopy, an endoscopy, a CT of my abdomen and everything.
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And everything came back normal.
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So that was great.
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So I was okay for a little while.
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And then, and then COVID hit.
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Obviously COVID, homeschooling, three boys working from home, that was pretty full on.
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And I started to just get really angry, really angry with everyone.
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And my husband will come back from work and he'd lie on the lounge in front of me as I'm cooking dinner and I'm just like I want to just just go away, like I don't want you to be there, you're just lying in, you're lazy.
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And so I got really angry and you know, and it was easy to sort of fob it off as being COVID, but then I was like no, I'm, I don't feel well.
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And at that time I think my sister-in-law was going through.
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She'd started having hot flushes and she'd gone to her GP and she's about four years older than me and she'd gone to her GP and she'd been prescribed hormone replacement therapy.
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I was like, oh, doesn't that give you breast cancer?
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She goes doesn't that give you breast cancer?
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Yes, no, those studies are a load of rubbish.
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Um, I was like, okay, she's got a PhD and she's very intelligent.
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Um, she's a dentist.
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And I was like she knows what she's talking about.
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She will have read the papers to make sure that she's doing the best for her body.
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So then I started sort of going down a rabbit hole of looking at hormone replacement.
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I was like I think I've got.
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I think I've got perimenopause.
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This term perimenopause came into my world in some way, probably from social media or from my own research.
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I was like, oh, I don't know what this perimenopause is.
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So here we are 25 years in healthcare, I'd never heard the term perimenopause before, so there's an alarm bell for you there.
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So anyway, I started going deep down the rabbit hole of understanding what hormones do, how they work our cycles, how hormones affect our brain, how hormones affect our body, how they affect our bones, how they affect our musculoskeletal function, everything.
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And then I found out there's estrogen receptors all over your body.
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There's progesterone receptors everywhere.
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There's testosterone receptors everywhere.
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But I just started.
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My whole world just went all of a sudden, so much of my life made sense, and this is just research that you're doing yourself you weren't talking to Kerry about this at this point it was just
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you deep diving down rabbit holes deep, diving down rabbit holes, I found an amazing menopause advocate, louise Newsome, who works out of the UK.
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This is a few years ago, so she was known, but probably not as famous as she is now in this, in this space.
00:16:43.061 --> 00:16:47.087
She she had a free online course called the Confidence in Menopause course.
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So I did that and I was like, oh, this is fabulous, like this is such an amazing resource.
00:16:51.562 --> 00:17:20.817
And at this time I was still not feeling great and I went back to see Kerry and I said, look, I think she prescribed me hormone replacement therapy by then in the form of transdermal estrogen, so estrogen that you just put on your skin, and then progesterone, yeah, um, but I was still not right with that and I'd I'd sort of gone quite deep and I said my brain is still really foggy, my strength is not where it is, libidos there's none, and I think I think I'm missing testosterone.
00:17:20.817 --> 00:17:26.744
And she's like, oh, I don't, it's out of my scope, like I, I just don't know much about about that.
00:17:26.744 --> 00:17:35.425
Um, I said, look, I've been googling on that patient and she knows I'm a nurse, so she's very respectful of her patients and she really does listen to her patients.
00:17:35.425 --> 00:17:37.340
Um, I said, look, follow this lady.
00:17:37.340 --> 00:17:40.013
What she says is common sense, kerry, like it's common sense medicine.
00:17:40.013 --> 00:17:44.724
She offers a fabulous course like, please, just just explore this.
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I'm going to go and find someone that will prescribe testosterone for me because I feel like I need to try this.
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And then about three months later, like we live in a small community, I know kerry personally as well and she emailed me, said oh my god, this is a game changer for women's health, jules.
00:17:58.741 --> 00:18:03.702
And I said I know, and now she's obviously one of the biggest menopause advocates in the country.
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Really, um, for, for women's health.
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And now, when you see women's health through the eyes of hormones, so much makes sense and that's exactly how I feel.
00:18:13.342 --> 00:18:14.827
So you know, I found the testosterone.
00:18:14.827 --> 00:18:17.518
I got the testosterone and felt heaps better and that was.
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That was the missing link for me.
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It's not for everyone but it, but it really was for me, for you.
00:18:21.819 --> 00:18:24.851
So then then I was like I didn't know about this.
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I've ran into perimenopause.
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It hit me between the eyes and I'm like, if I don't know about it, you know, I'm educated.
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I've worked in health care.
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My gp didn't know about it.
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Women don't know about this.
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We need to talk about it.
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We need to.
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We need to let people know about the effects of perimenopause.
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Um, you know, some people are going to sail through it and some people are going to it's going to knock them for six.